I know it's been a couple of weeks since I last wrote so first I need say sorry for that! I have to say there's been some BIG changes since my last update. Honestly, the weeks have been going by so quickly I can't believe it's been two weeks. We've been playing and enjoying this summer weather, before I know it the weeks gone.
Well I'm more than happy to announce ( uhhh ummm drumroll please......) COLTER IS OFF HIS OXYGEN!!!!!!!!!!! Can you believe it? We were so so happy to see his sweet little face without any tubes, this was the first time since before his surgery. For a kid who they thought would be on oxygen for a year, he's showing them, 3 mos!! At last Tuesday's appointment Dr. H thought he looked so good! He was full of optimism and can't believe what strength Colter has, for the first time he looked at me and said, "Ya know I think Colter is going to be just fine.." He said it's hard to compare Colter to other kids because his diagnosis is just so complex and he was so sick. But compared to other kids his rebound is just tremendous, where other kiddos just don't turn the corner. I was so happy to hear such wonderful news and it truly validated what I'd been feeling. Then came Colter's ECHO, he's getting to be such a good boy during those long ECHO appointments. Well when Dr.H came in he looked at the ECHO and actually thought Colter's heart might be beating a little more vigorous! YAY, what a great couple weeks filled with lots of wonderful news.
I was going to try and post this yesterday (Mother's Day) but I didn't find the chance. I felt so blessed yesterday sitting at home with my family. I think many of us often take for granted the time we get with our families, I couldn't help but think about all of the Mom's spending their Mother's Day at their childs bedside at the hospital. I hope everyone can pray for them, I know I did. That life is a distant reality of mine, it's hard to remember it sometimes. It's hard to look at our sweet Colter and imagine how sick he was. Ever since he's come off the oxygen it's like a new life in Colter has been born. It's like now he's not held back by the oxygen tubing and can act like a baby. Since he came off the oxygen he's been blowing raspberries, making all sorts of sounds with his voice, twisting and reaching, and with a little assistance rolling over.. Now some of you with healthy babes might be thinking Colter is behind developmentally. But Dr. H said he is right on track cognitively and as far as physically goes, he said Colter will catch up. You gotta remember while most babies were eating, sleeping and growing in the first 3 mos, Colter was fighting for his life sick as a dog. Another thing that Dr. H said to me that stands out would be he's glad that they didn't give up on Colter. He said they were at a point were they didn't know what else to do for him, and thankfully by the grace of God Colter found some strength and gave them a reason to keep trying. It's hard when you look at the tiny body of a baby and really imagine that they have so much fight and strength inside there. I know with Colter that crossed my mind a couple of times, I just looked at how small he was a thought there's just no way, not with everything he has going against him. I never gave up on him, not once, but I could only imagine how hard he had to be fighting.
Yesterday when I was playing with Colter I noticed two new scars on him. One on his back, my explanation for that one would be when they tried to drain his lung in IR, right before he crashed. Another one was on his wrist, this one had to be where they placed the line, I can't remember the "technical" term for it but it measured his blood pressure by the second..Uh now it's going to bug me, but anyways. Colter's little body has so many scars to remind us of the first few months of his life. I can't help but remember when his little body of scar free, as a baby should be. I actually read a blog of another Truncus momma and what she wrote took the words out of my mouth. Before his surgery I couldn't help but rub his chest and look at his chest, I tried to imbed what his chest looked like in my brain before it was cut open and scared. I can remember, but now those scars are like appendages to Colter. There apart of him, Colter wouldn't be who he is without them. Each dimple and mark is the reminder of everything his little body had to go through to get to where we are today. Almost like a book right on his body, I can go through scar by scar and tell you the story behind each one.
Yesterday as I was watching the sunset with my wonderful husband, I couldn't help but feel like the luckiest girl in the world. Tyler is my steady rock, he is my best friend and my team mate against the world. With me every step of the way, I feel so lucky to have the fairytale love I always dreamt about. Not only do I have the best husband EVER, :) I have the best kids EVER. They both were at home asleep in there beds, they fill everyday with so much love and happiness. They both are smiling happy kids...What more could I ask for? Thank you Lord for all your blessings..
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